Flashcards
Definitions
Flashcards do conjunto (12)
- 1Disabled Child/PersonThe Children’s Act (1989), defines a disabled child as a child who is blind, deaf or dumb or suffers from a mental disorder of any kind, or is substantially and permanently handicapped by illness, injury or congenital or other disability that maybe prescribed
Disability Discrimination Act (1995), defines a disabled person as a person with a physical or mental impairment which has a substantial and long term adverse effect on his ability to carry out normal day to day activities - 2Critiques of the term disabled child/child with a disabilityDisabled could be seen as a negative word - differently abled was a term used in 1980's as a more positive way of looking at disability
Older family members/different cultures may call disability words that used to be acceptable but are now not e.g handicapped
Shows children and families may have their own word to describe their child's condition and it is important to be aware of this as what one family finds acceptable another family may find offensive.
The term disabled is interpreted by the eye of the beholder. A child may not see themselves as disabled regardless of a condition that they may have. - 3Vulnerable child Use the Key (2012)A vulnerable child is one that is unable to keep themselves safe from harm or who is at risk of not reaching their full potential and achieving their outcomes
- 4Why is it important for nurses to be aware of definitions of disability/complex health needs?Enables better communication
Cultural sensitivity
Nurses are role models - use of appropriate language is important as people may look to nurses and copy the words used
To enable us to provide individualised care to children and families to ensure they feel respected and valued - 5Children with Complex Needs Department for Education (2013)Such children have a number of discrete needs that require additional support from more than one agency. Their needs are often chronic and may be lifelong. Different needs tend to interact, exacerbating their impact on the child's development and well-being.
- 6Other words/phrases for complex needs/multiple health needs'multiple disadvantage', 'multiple disabilities', 'multiple impairment', 'dual diagnosis', 'high support needs', 'complex health needs', and 'multiple and complex needs'
- 7Complex multiple health needs (Complex Needs Group, Scotland, 2006)“A child with multiple and complex disabilities has at least two different types of severe
or profound impairment such that no one professional, agency or discipline has a
monopoly in the assessment and management.” - 8Multiple complex disability (Summery Statistics for the Support Needs System)i. severe or profound disabilities in at least 3 of the following disability categories:
motor impairment, hearing impairment, cognitive impairment, speech and language
impairment, behaviour problems, feeding problems, additional chronic health needs
OR
ii. severe or profound disabilities in at least 2 of the following disability categories
plus the need of at least 2 types of resources: therapy services, additional educational
resources, nursing care needs, social care resources, mental health services - 9ComplexComposing of many inter-woven and connected parts of which the links may be difficult to understand
- 10Challenges to caring for a child with complex health needsInsufficient understanding
Multiple needs
Conflicting priorities
Unclear cause & effect
Unpredictability – rapid and unexpected change
Treatment interaction risks and choices
Potential for professional dilemmas - 11Self efficacy“a person’s belief in his or her ability to succeed in a particular situation”
- 12Multiple health needs Rankin and Regan (2004)Suggest that multiple health needs embrace two aspects of a health problem
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- Children with Complex Needs
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